Yesterday, the Senate voted 94 to 5 to pass the 21st Century Cures bill, which includes a long sought after national neurological disease surveillance system. Once the provision is funded, it will create a Parkinson’s disease registry at the Agency for Toxic Substances and Disease Registries (ATSDR) at the Centers for Disease Control (CDC). [Note – getting the funding is the next step. The bill authorizes the money to be spent, but that’s just step one. Step two is getting Congress to spend the money.]
The bill provides a total of $6.3 billion in new funding for the NIH, FDA, to combat the opioid crisis, and other priorities. A more detailed description of the significance of this legislation for the Parkinson’s community is currently in development.
Please share this with your PD community and we will keep you updated as to the next steps as they become available.
Thanks to all who helped to make this happen.
Here is an article posted in the NY Times about the bill: http://www.nytimes.com/2016/12/07/us/politics/21st-century-cures-act-senate.html?_r=0